No Limits! An Advocacy Warrior
My story started in January 2021. My town had just begun our second lockdown of the Pandemic, and I was […]
Insecurities
Julia Magdei was born in Hollister, CA in 2005. From a young age, she displayed a remarkable aptitude for academic […]
Survivor TAAF Talk
As an AVM and Aneurysm survivor I was extremely fortunate to have been treated at one of the top hospitals […]
TAAF Talk Caregiver
Be Their VoiceArteriovenous Malformation (AVM), a rare disease of complex tangles of abnormal arteries and veins that can rupture resulting […]
Clinician TAAF Talk
Clinicians on Pediatric AdvocacyWe’re delighted to explore the question, “How can children–and their parents and neuro teams–advocate for better access […]
Ruptured: A Rare AVM Warrior Mama’s Perspective
Hello. My name is Adrienne Adesanwo, and I am the mom of an AVM Warrior. I would say that I […]
AVM Warrior Gives Rare Disease Presentation
Izzie, a young AVM warrior, found a way to tell her classmates about living with a rare disease by giving […]
Survivor TAAF Talk
In Yiddish we have a saying: Beshert. It roughly translates to “meant to be,” and it’s used when talking about […]
Clinician TAAF Talk
My entire life I have grappled with the concept that everything happens for a reason. At a young age I […]
Support Team TAAF Talk
Does everything happen for a reason?The short answer is yes. Nothing happens without some form of influence. Why did the ball […]
